Archive | 23. Apr, 2008

Update with pictures

Littlest had an appointment with the feeding clinic yesterday. She is progressing well. The NG tube has helped her gain weight and she is sucking better as well as being more interested in waking up to eat. She has graduated to a new bottle and we don’t have to do the side lying positioning when she eats. It will be much easier to feed her now. We still will do tube feedings, but only when she’s too sleepy.

Bug is doing well in her young toddlers room at daycare. She is one of three who aren’t walking yet. Daddy was a little worried if she would get bullied by the walkers, but the teacher said that if someone gets into Bug’s business, Bug takes care of it and crawls over and takes her toy back or whatever. Go Bug! She has been having more trouble sleeping at night, but I think it’s because she is having another wave of new teeth coming in, including molars. She drools a lot. I’ve missed my time with Bug. Littlest takes a lot of time, but Bug loves her Daddy, so they get alone well. I have been making time for Bug and we have some good snuggles and playtime.


I’ve been sleeping in Bug’s room with Littlest because Bug is so fascinated with Littlest that she won’t sleep. I had her in on the bed with me one morning and we started eating on a roll. Well, more roll ended up on the bed. No problems, we had fun.



I love this picture, she looks stubborn and determined to keep going. She loves her princess ride. She actually uses it as a walker and pushes it up and down the hall constantly.

My other kids

Littlest in her Kitten sleeper with her kitten socks

Last Week - Season Finale

Just to finish off my busy week last week, a few more interesting things happened.

After we got home from the negligent children’s hospital we all were exhausted and managed to sleep pretty well. Early Thursday morning, Littlest managed to pull out her feeding tube. Hmmm….seems to me that wasn’t supposed to happen according to Ms. I’m too busy to teach you nurse. We had an already scheduled appointment with the new pediatrician and so I waited until we went in to have them put the tube back in. We actually saw the new pediatrician. I love her. She is no nonsense, but yet compassionate and very perceptive. She had me crying in less than 5 minutes. Okay, I cry easy, I know that, but I’ve been very good lately about buckin’ up and suckin’ up. She just immediately knew the situation and seemed to know our stress points and where we needed help. I’m sure years of experience taught her that, but compared to our old pediatrician, there is no contest. I felt comfortable and not frustrated. My questions were answered before I even asked them. She also understood that we were constantly having appointments every week, so she said to schedule every other week so not to stress us all out. Wonderful!

We then had a 2:30 appointment with the home health nurse to learn to insert the feeding tube. Once again, I was not really impressed. Mainly what we did was paperwork. She was one of those slow motion people, nothing happened fast. What could have been done in half an hour, was done in almost two hours. She would be writing something down, then slowly look up and over at Littlest, then make a little noise and then go back to her paperwork. Then she very briefly said what to do to insert the feeding tube and that we weren’t going to actually do it because it seemed to be in fine and no use stressing out Littlest. Well apparently Littlest decided I needed to actually do it because she pulled out her tube a few minutes later. It really isn’t any big deal. The hardest part is getting the tape on her face to make it stay. I’ve re-inserted her tube about four times now and it’s not so bad. So, if you ever need an NG tube inserted, I’m your man. The home health nurse finally left, slowly, and we took the rest of the day off for good behavior.

Friday was Bug’s 12 month checkup and shots. She is such a good girl. She only cried a little bit. She slept for about three hours afterwards though.  Her height has finally reached the 52nd percentile and her weight is still in the 30th, but her head is way up there.  She is doing good, reaching milestones, and just an all around joy.   Daddy took her to her appointment with the old pediatrician since the appointment was already scheduled. It will probably be the last time Bug goes there. Even though I really like the doctor and I’ve seen her for years and years, but since she went into her own practice, she is always too rushed and I feel like she’s out the door before I even get to ask my questions. Oh well, time to move on.

Saturday I took a couple hours all to myself. I took a Knifty Knitter loom knitting class at Craft Warehouse. It was fun. I think I could “knit” using the looms and it’s easier on the hands that’s for sure. 

So that rounded out the week.   I have to add to my previous post about the stay at the lack of care hospital.   When my child is in the hospital, I want to be there and help care for her, I just didn’t think I would be doing most of the care.   I had more monitoring and watching when I had my gallbladder out as an adult than she did as a preemie on a peds floor.  Very unacceptable.